My quest for answers to my family's genetic mystery as they are uncovered in real time.
Coming Soon: A summary of my June 6th Zoom meeting with University of Iowa researchers Dr. Lori Walrath and Nathan Mohar. Exciting data from our smad7 study will be shared.
Catch up with my story on This American Life.
David Epstein's groundbreaking article, "The DIYScientist, the Olympian and the Mutated Gene."
This webinar features an interview with Jill Viles and Congenica, a U.K. based team that completed whole exome sequencing for Jill and her family.
Richard Davies de Bronkart Jr., widely known as e-Patient Dave, is a cancer patient and blogger who, in 2009, became a noted activist for health care transformation through participatory medicine and personal health data rights. This podacast features an interview of Jill Viles by e-Patient Dave. The topic of patient empowerement is explored as Jill shares her personal story as a patient activist.