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Jill Viles DIYScientist

Jill Viles DIYScientistJill Viles DIYScientistJill Viles DIYScientist
Journalist, David Epstein and Author, Jill Viles

Welcome

My quest for answers to my family's genetic mystery as they are uncovered in real time.
 

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Featured Content

Laboratory Field Trip

Laboratory Field Trip

Laboratory Field Trip

Coming Soon: A summary of my June 6th Zoom meeting with University of Iowa researchers Dr. Lori Walrath and Nathan Mohar. Exciting data from our smad7 study will be shared.

Featured Podcast

Laboratory Field Trip

Laboratory Field Trip

Catch up with my story on This American Life.

This American Life episode #577

Featured article

Laboratory Field Trip

Featured article

David Epstein's groundbreaking article, "The DIYScientist, the Olympian and the Mutated Gene."

ProPublica

Featured Webinar

Podcast with e-Patient Dave

Featured article

This webinar features an interview with Jill Viles and Congenica, a U.K. based team that completed whole exome sequencing for Jill and her family.

Discovering the missing link between my rare disease and an Olympic athlete

Podcast with e-Patient Dave

Podcast with e-Patient Dave

Podcast with e-Patient Dave

Richard Davies de Bronkart Jr., widely known as e-Patient Dave, is a cancer patient and blogger who, in 2009, became a noted activist for health care transformation through participatory medicine and personal health data rights.  This podacast features an interview of Jill Viles by e-Patient Dave.  The topic of patient empowerement is explored as Jill shares her personal story as a patient activist.

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